Tag: paediatric

The amazing and dedicated team at Bear Cottage has taken out the award for 2019 NSW Volunteer Team of the Year for the Northern Beaches region. Bear Cottage is the only children’s hospice in NSW. They provide 24/7 palliative care to children with life-limiting illnesses and provide much needed respite for their families and carers. […]

A few weeks ago at our Volunteer Conference we had the lovely Joanna Wagg present an abstract. We had a lot of people comment on what an impact it had on them. Jo, who has a background in nursing and disability support, volunteers at Bear Cottage in Manly.  Bear Cottage is the only children’s hospice […]

See the original story by Lisa Wachsmuth in the Daily Examiner 3rd February 2019. Jayde Jordan found out halfway through her pregnancy that the baby boy she was carrying would be born with a rare and incurable disease. Yet it wasn’t a shock to the Albion Park mother, whose two younger brothers had already been […]

7th of March, Westmead Children’s Hospital. The 2019 15th Annual Paediatric Palliative Care Symposium will be held in March with international guest speaker Stacy Remke MSW, LICSW, ACHP-SW. Stacy is a Clinical Social Worker and a Senior Teaching Specialist at the University of Minnesota’s School of Social Work, with a particular interest in the care […]

Thanks to Westmead Children’s Hospital, this video tells the story of Anna, Massimo’s mum, and paediatric palliative care volunteer Debi. As part of the Share the Volunteer Experience series, the video helps explain the role of a paediatric palliative care volunteer in the life of a family. Or click here to watch the video on […]

See the original story by Alesha Capone in the Hume Leader. THE Nugagahakumburas consider Carolyn Cook a part of their family, even though they are not related by blood. Ms Cook, of Craigieburn, is a volunteer with the Very Special Kids charity which helps children with life-threatening conditions. Around 10 months ago, she started volunteering […]

Megan Burke, our policy officer at Palliative Care NSW, is looking into the important and unique role performed by paediatric palliative care volunteers in NSW. “Through our mapping exercise in 2014 we became aware that the value of volunteers was sometimes not fully appreciated by families and carers, by clinicians and by officials in the […]

This article by Kate Symons originally appeared in the Sydney Morning Herald on 16 January 2016. Palliative care volunteer Lainie Harnett expected to take on some household chores when she was sent to her new placement. Instead she met Sandra Wright and her family, and a unique bond was formed. SANDRA: It was 2009 when […]

The Sydney Children’s Hospital Network is holding it’s 12th Annual Paediatric Palliative Care Symposium on Thursday the 3rd of March (followed by workshops on Friday the 4th of March) 2016. This year’s keynote speaker is Ulrika Kreicbergs RN, PhD a researcher exploring factors in health care that can be modified or avoided to reduce suffering […]

Every 2 years Palliative Care NSW pauses to recognise the efforts and talents of one of the Palliative Care volunteers with the Volunteers Supporting Palliative Care Award. This year we decided to focus on paediatric Palliative Care volunteers. The 2015 award recipient for is Joe Stanioch from Bear Cottage. Joe received his award from NSW […]