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	<title>News Archives - VolunteerHub - Palliative Care NSW</title>
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	<title>News Archives - VolunteerHub - Palliative Care NSW</title>
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		<title>What do we know about volunteering in Australia?</title>
		<link>https://volunteerhub.com.au/what-do-we-know-about-volunteering-in-australia/</link>
		
		<dc:creator><![CDATA[Kate Bowman]]></dc:creator>
		<pubDate>Fri, 11 Sep 2026 02:46:28 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[GSS]]></category>
		<category><![CDATA[statistics]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15702</guid>

					<description><![CDATA[<p>The post <a href="https://volunteerhub.com.au/what-do-we-know-about-volunteering-in-australia/">What do we know about volunteering in Australia?</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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			<p>The annual General Social Survey by the Australian Bureau of Statistics keeps us up to date. During 2025, 9.5 million people volunteered in Australia in either a formal or informal capacity or both.</p>
<p>There is one notable long term trend. 2010 was the peak of formal volunteering with 36.2% of Australians involved. In 2020, due to COVID shutdowns, rates of volunteering dropped significantly to only 25%. Interestingly, 2025 data shows volunteering has not recovered since then. In fact is has decreased slightly to 22.6%.</p>
<p>The GSS contributes this to the cost of living crisis and the number of households reporting being in financial stress. They predict this year&#8217;s fuel crisis will negatively impact volunteering rates further.</p>
<p>The good news is while the number of formal volunteers has decreased, the number of hours they are putting in has risen. Approximately 618 million hours were spent volunteering in 2025, up from 490 million hours in 2020.</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
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<p>The post <a href="https://volunteerhub.com.au/what-do-we-know-about-volunteering-in-australia/">What do we know about volunteering in Australia?</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>Farewell Janeen</title>
		<link>https://volunteerhub.com.au/farewell-janeen/</link>
		
		<dc:creator><![CDATA[Kate Bowman]]></dc:creator>
		<pubDate>Tue, 08 Sep 2026 00:37:03 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[buronga]]></category>
		<category><![CDATA[farewell]]></category>
		<category><![CDATA[FWLHD]]></category>
		<category><![CDATA[Janeen Norris]]></category>
		<category><![CDATA[volunteer manager]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15696</guid>

					<description><![CDATA[<p>The post <a href="https://volunteerhub.com.au/farewell-janeen/">Farewell Janeen</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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			<p>The small town of Buronga near the Victorian border is about to be a lot quieter without their palliative care volunteer coordinator Janeen Norris. After five years in the role, Janeen finished up at the end of August.</p>
<p>Janeen made an impact on the NSW Network of Managers of Palliative Care Volunteers. She was a regular at the quarterly meetings and stepped up into the role of co-convener for 2024/2025. Janeen also contributed a lot of time helping organise major events including the 2023 and 2025 Volunteer Conferences and the 2022 and 2024 Volunteer Manager Conferences. Her conference-themed nail art was always a sight to behold and something to look forward to.</p>
<p>Before her last day I had the opportunity to ask her to share some words of wisdom with the network. She said, &#8220;Never give up looking for volunteers and never be surprised about where you might find one.&#8221;</p>
<p>Her best memory comes from the time when her service introduced virtual reality goggles for patients. One of the early users was a gentleman who had always wanted to go to Canada but was too unwell for travel. At first reluctant to try the &#8216;new-fangled gadget&#8217;, after some encouragement from his wife who had tried them and convinced him they were worth his time, he gave them a go. He was able to enjoy Canada in virtual reality seeing bears, mountains, and other wonders up close.</p>
<p>&#8220;After 20 minutes he came out of his bedroom singing and said he was going to go sit on the patio. Until that moment, he hadn&#8217;t been outside for weeks! It was just such an amazing change. I cried all the way home,&#8221; she said.</p>
<p>Janeen is currently studying for a bachelor degree to become a pastor. She leaves volunteer management to take a job with more flexible hours, a better fit for her study schedule.</p>
<p>Thank you for all your contributions, Janeen. We wish you all the best in the future.</p>
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<p>The post <a href="https://volunteerhub.com.au/farewell-janeen/">Farewell Janeen</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>Giving Hope a Voice: Songwriting Competition</title>
		<link>https://volunteerhub.com.au/giving-hope-a-voice-songwriting-competition/</link>
		
		<dc:creator><![CDATA[Maria Lopez]]></dc:creator>
		<pubDate>Fri, 04 Sep 2026 07:42:32 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[palliative care]]></category>
		<category><![CDATA[Songwriting Competition]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15691</guid>

					<description><![CDATA[<p> Giving Hope a Voice: Songwriting Competition</p>
<p>The post <a href="https://volunteerhub.com.au/giving-hope-a-voice-songwriting-competition/">Giving Hope a Voice: Songwriting Competition</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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										<content:encoded><![CDATA[<p>Music has a unique ability to connect people, inspire change, and tell stories that words alone cannot. Recognising this power, the Asia Pacific Hospice Palliative Care Network (APHN), in partnership with Global Partners in Care, has launched the <strong>APHC27OPCC Songwriting Competition</strong>, inviting musicians and songwriters across the Asia Pacific region to create an anthem for palliative care.</p>
<p>More than just a songwriting contest, this initiative aims to raise awareness of palliative care to new audiences. The winning song will debut at the <strong>Asia Pacific Hospice Palliative Care Conference (APHC27OPCC) in Adelaide</strong> and is intended to become an enduring anthem for future APHC conferences.</p>
<p>One of the key messages behind the competition is that palliative care is not simply about end-of-life support. APHN highlights that palliative care is fundamentally about <strong>reducing preventable suffering</strong>, addressing physical, emotional, and social challenges with compassion and care.</p>
<p>The competition encourages participants to explore questions such as:</p>
<ul>
<li>What does hope sound like?</li>
<li>How can music express compassion?</li>
<li>What happens when suffering is met with understanding and support?</li>
</ul>
<p>Rather than focusing on loss, entrants are invited to create songs that celebrate resilience, connection, hope, and humanity.</p>
<p>The competition is open to songwriters, musicians, and storytellers who want to use their creativity to make a difference. Participants must submit an original, fully produced song featuring both original lyrics and music. Instrumental-only or lyrics-only submissions are not eligible.</p>
<p>Submissions are open from <strong>10 August to 31 December 2026</strong>, giving artists ample time to develop a meaningful and impactful piece of work.</p>
<p>Entrants are also invited to share a personal reflection about their connection to palliative care. Whether they are healthcare professionals, patients, caregivers, family members, or advocates, APHN wants to understand the inspiration behind each submission. Entries that demonstrate a genuine connection to the field will receive additional consideration during judging.</p>
<p><strong>Exciting Prizes on Offer</strong></p>
<p>The competition offers substantial recognition and rewards for outstanding entries:</p>
<ul>
<li><strong>Champion:</strong> USD $2,000 plus travel support to attend APHC27OPCC</li>
<li><strong>1st Runner-Up:</strong> USD $1,000</li>
<li><strong>2nd Runner-Up:</strong> USD $500</li>
</ul>
<p>Participants are also encouraged, though not required, to perform their song for a palliative care audience and submit a recording. These performance recordings may strengthen an entry by demonstrating how the song resonates with listeners.</p>
<p><strong>Entries will be assessed across three areas:</strong></p>
<ol>
<li>Vocal melody crafting and musicality (30%)</li>
<li>English lyrics crafting (30%)</li>
<li>Alignment with APHN&#8217;s mission of reducing preventable suffering through hope and compassion (40%)</li>
</ol>
<p>A distinguished judging panel includes award-winning Singaporean producer and songwriter <strong>Dr Ken Chong</strong> and acclaimed Australian artist and educator <strong>Corinne Starr</strong>, both recognised for their contributions to music and community engagement.</p>
<p>To participate and find out more information please click on the following link: <a href="https://aphn.org/aphc27opcc-songwriting-competition/" target="_blank" rel="noopener">APHC27OPCC Songwriting Competition</a></p>
<p>The post <a href="https://volunteerhub.com.au/giving-hope-a-voice-songwriting-competition/">Giving Hope a Voice: Songwriting Competition</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>The secret some Australians keep until they&#8217;re dying</title>
		<link>https://volunteerhub.com.au/the-secret-some-australians-keep-until-theyre-dying/</link>
		
		<dc:creator><![CDATA[Kate Bowman]]></dc:creator>
		<pubDate>Wed, 02 Sep 2026 06:56:02 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[disclosure]]></category>
		<category><![CDATA[Leo's place]]></category>
		<category><![CDATA[PCACT]]></category>
		<category><![CDATA[sexual abuse]]></category>
		<category><![CDATA[sexual violence]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15657</guid>

					<description><![CDATA[<p>CONTENT WARNING: This article refers to sexual abuse. More than half of Australians aged over 45 who have experienced sexual violence have never told another person what happened to them. Some carry that secret for 40, 50 or even 60 years. For a small but significant number, it is only after being diagnosed with a life-limiting [&#8230;]</p>
<p>The post <a href="https://volunteerhub.com.au/the-secret-some-australians-keep-until-theyre-dying/">The secret some Australians keep until they&#8217;re dying</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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										<content:encoded><![CDATA[<p style="padding-left: 40px;"><strong><em>CONTENT WARNING: This article refers to sexual abuse.</em></strong></p>
<p>More than half of Australians aged over 45 who have experienced sexual violence have never told another person what happened to them. Some carry that secret for 40, 50 or even 60 years. For a small but significant number, it is only after being diagnosed with a life-limiting illness that they finally find the courage to speak.</p>
<p>That little-known reality has prompted what is believed to be Australia’s first specialised training program designed to prepare palliative care workers for one of the most profound conversations they may ever have. Next month, Palliative Care ACT and the Canberra Rape Crisis Centre will begin training staff and volunteers across Canberra’s palliative care services, equipping them with the skills to respond safely and compassionately when patients disclose sexual violence during end-of-life care.</p>
<p>The initiative was born from a simple but confronting question: What happens when someone chooses the final chapter of their life to reveal its darkest one? Palliative Care ACT chief executive officer Paul Arztenhofer said receiving a terminal diagnosis often changed how people looked back on their lives.</p>
<p>“Life-limiting illness diagnosis or end-of-life care often prompts reflection, and many people naturally spend time looking back over their lives,” he said.</p>
<p>“For some, that can include conversations they have wanted to have for years, or experiences they have never previously felt able to share. It can become a time of truth-telling and addressing things that have remained unspoken.”</p>
<p>Serious illness can also bring buried trauma back to the surface. Personal care, medical examinations and physical touch may trigger memories of past abuse, while the trusting relationships built with palliative care workers often create the first space where someone finally feels safe enough to speak. Sometimes, that moment comes not in a hospital ward, but over a cup of coffee.</p>
<p>At Leo’s Place, Palliative Care ACT’s respite home, guests often spend time talking with staff in a setting deliberately designed to feel more like a home than a healthcare facility. Mr Arztenhofer recalls one woman whose story has stayed with him.</p>
<p>The 28-year-old, originally from Africa, had survived years of sexual violence in an arranged marriage before coming to Australia. She is now undergoing treatment for an aggressive cancer and has been told she will never be able to have children. It was only while spending time at Leo’s Place that she felt able to tell someone what had happened.</p>
<p>Being able to finally speak about the abuse, Mr Arztenhofer said, gave her a sense of peace after years of carrying the trauma alone.</p>
<p>“Going through a diagnosis that means your life is going to change makes people reflect on everything that’s happened to them,” he said, “For a lot of people, being able to share or release that trauma means they’re able to take their next steps feeling more comfortable and at peace. And sometimes, if the perpetrator was someone known to the family, simply being able to tell another person without judgment is a huge step.”</p>
<p>Quite often, he said, palliative care workers are the first people survivors choose to tell. The numbers suggest many Australians may be carrying that burden in silence. Nearly three in 10 Australians experienced child sexual abuse, while more than half of Australians aged over 45 who experienced sexual violence have never disclosed it to anyone. That means many people entering palliative care may be carrying experiences their partners, children and even closest friends know nothing about. Yet there has been very little Australian research into how often those disclosures occur during end-of-life care.</p>
<p>International evidence is increasingly showing that serious illness, particularly cancer treatment and palliative care, can reactivate memories of childhood sexual abuse and other trauma. The immediate response to Canberra’s new training also highlights the need, with 26 staff and volunteers already registered before the first session has even been delivered.</p>
<p>Mr Arztenhofer said the training was not about turning palliative care workers into counsellors. It was about making sure the first response to a disclosure did not cause further harm.</p>
<p>“The training is not about giving staff and volunteers a script,” he said, “It’s about helping them listen well, respond in a trauma-informed way, understand the boundaries of their role, and know what support pathways are available.”</p>
<p>He said the training also recognised that hearing such deeply personal stories could affect staff and volunteers themselves.</p>
<p>“We want to make sure the person disclosing feels heard and acknowledged and doesn’t experience additional trauma because of the conversation. But we also have a responsibility to make sure our staff and volunteers understand how to process what they’ve heard and know what supports are available for them as well.”</p>
<p>The partnership itself began with a conversation. The chief executives of Palliative Care ACT and the Canberra Rape Crisis Centre met at a community event and realised both organisations were supporting people through some of the most difficult moments of their lives. What started as an informal discussion quickly became a plan to develop specialist training and stronger referral pathways for palliative care staff.</p>
<p>Canberra Rape Crisis Centre chief executive officer Tiffany Karlsson said disclosures of sexual violence could happen at any stage of life, including many decades after the abuse occurred.</p>
<p>“For victim-survivors, the response they receive in that moment can shape whether they feel believed, respected and safe or whether they feel silenced all over again.”</p>
<p>The organisations believe the program is the first Australian initiative developed specifically for palliative care settings, highlighting how little attention has been paid to an issue that sits at the intersection of trauma, ageing and end-of-life care.</p>
<h4>This story written by <a href="https://region.com.au/author/nalvi/" target="_blank" rel="noopener">Naziya Alvi Rahman</a> was first published by the <a href="https://region.com.au/the-secret-some-australians-keep-until-theyre-dying/991665/" target="_blank" rel="noopener">Region Canberra</a> on 22 August 2026. It has been republished with permission. </h4>
<p><em>If this story has raised any concerns for you, <a href="https://1800respect.org.au/" target="_blank" rel="noopener">1800RESPECT</a>, the national 24-hour sexual assault, family and domestic violence counselling line, can be contacted on 1800 737 732.</em></p>
<p><em>The NSW Sexual Violence Helpline is available 24-hours on 1800 424 017. The Rainbow Sexual, Domestic, and Family Violence Helpline available 24-hours, free and confidential, can be reached on 1800 497 212.</em></p>
<p><em>For Lifeline call 13 11 14. In an emergency, call triple zero.</em></p>
<p><em>If you have been affected by sexual violence, or someone you know has, you can report it to police. Read about the reporting options on the NSW Police Community Portal <a href="https://portal.police.nsw.gov.au/adultsexualassault/s/reportingoptionsvictims?language=en_US" target="_blank" rel="noopener">here</a>.</em></p>
<p>The post <a href="https://volunteerhub.com.au/the-secret-some-australians-keep-until-theyre-dying/">The secret some Australians keep until they&#8217;re dying</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>Here&#8217;s a wind phone I prepared earlier</title>
		<link>https://volunteerhub.com.au/heres-a-wind-phone-i-prepared-earlier/</link>
		
		<dc:creator><![CDATA[Kate Bowman]]></dc:creator>
		<pubDate>Thu, 27 Aug 2026 06:25:14 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Grief and Bereavement]]></category>
		<category><![CDATA[itaru sasaki]]></category>
		<category><![CDATA[kaze no denwa]]></category>
		<category><![CDATA[Mt Druitt]]></category>
		<category><![CDATA[Ray Baldacchino]]></category>
		<category><![CDATA[Western Sydney Supportive and Palliative Care Volunteers]]></category>
		<category><![CDATA[Wind phone]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15638</guid>

					<description><![CDATA[<p>Ray Baldacchino used to volunteer as a bus driver bringing patients to Mt Druitt hospital for dialysis. Then COVID hit and all volunteering stopped. Not to miss an opportunity, when volunteering restarted in 2022, the volunteer manager instead asked Ray to join the palliative care volunteering team. It was during his initial palliative care volunteer [&#8230;]</p>
<p>The post <a href="https://volunteerhub.com.au/heres-a-wind-phone-i-prepared-earlier/">Here&#8217;s a wind phone I prepared earlier</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p>Ray Baldacchino used to volunteer as a bus driver bringing patients to Mt Druitt hospital for dialysis. Then COVID hit and all volunteering stopped. Not to miss an opportunity, when volunteering restarted in 2022, the volunteer manager instead asked Ray to join the palliative care volunteering team.</p>
<p>It was during his initial palliative care volunteer training that Ray first heard about wind phones. It was in the section covering grief and bereavement and something about the idea really struck a chord with him.</p>
<p>A wind phone is a disconnected, non-working telephone set up in a quiet space where people can have one-way conversations with deceased loved ones. Itaru Sasaki created the very first wind phone, or <em>Kaze no Denwa,</em> in his own private garden in Ōtsuchi, Japan in 2010 to help him cope with losing his cousin to cancer.</p>
<p>A year later, after the devastating Tōhoku earthquake and tsunami, Sasaki opened the booth to the public to help grieving community members. Since then, more than 30 000 people have visited there, and a global <a href="https://www.mywindphone.com/" target="_blank" rel="noopener">wind phone movement</a> grew.</p>
<p>Inspired by the idea, Ray got to work building his very own wind phone from scratch. With a background in sheet metal work and other types of construction he had the skills to get it done in only a couple of months. The result? A beautiful full size phone booth style wind phone nestled under the shade of a frangipani tree in his backyard. August 5 marks it’s 3-year anniversary.</p>
<p>Like Sasaki’s original, this wind phone is not open to the public. It is however available to his fellow volunteers. Ray knows that many volunteers are drawn to palliative care because they have their own experiences of grief and the nature of the role may leave some looking for an outlet to vent their feelings. A wind phone is the perfect place to do so.</p>
<p>Not wanting to stop at only one, Ray has another two wind phones in the works. One will be stationed outside Mt Druitt Palliative Care Unit near the fishpond and barbeque area. Once installed it will be a great resource for patients, families, carers, volunteers, and staff. He has already started pulling materials together for the third which will be in the iconic bright red British telephone box style.</p>
<div id="attachment_15640" style="width: 222px" class="wp-caption aligncenter"><img fetchpriority="high" decoding="async" aria-describedby="caption-attachment-15640" class="size-medium wp-image-15640" src="https://volunteerhub.com.au/wp-content/uploads/2026/08/Wooden-Phone_The-Windphone-story_Ray-212x300.jpg" alt="" width="212" height="300" srcset="https://volunteerhub.com.au/wp-content/uploads/2026/08/Wooden-Phone_The-Windphone-story_Ray-212x300.jpg 212w, https://volunteerhub.com.au/wp-content/uploads/2026/08/Wooden-Phone_The-Windphone-story_Ray.jpg 319w" sizes="(max-width: 212px) 100vw, 212px" /><p id="caption-attachment-15640" class="wp-caption-text">Under construction &#8211; Ray&#8217;s wind phone destined for the Mt Druitt Palliative Care Unit</p></div>
<p>Thanks Ray, you’re a legend.</p>
<p>You can read more about wind phones in our recent news posts <a href="https://volunteerhub.com.au/listening-to-the-wind-creating-a-wind-phone-in-sydney/" target="_blank" rel="noopener">here</a> and <a href="https://volunteerhub.com.au/the-first-wind-phone-in-nsw/" target="_blank" rel="noopener">here</a> or read <em><a href="https://www.goodreads.com/en/book/show/54776222-the-phone-booth-at-the-edge-of-the-world" target="_blank" rel="noopener">The Phone Box at the Edge of the World</a></em> book written by Laura Imai Messina. If movies are more your speed you might like to watch <em>Voices in the Wind</em> (2020) which features the original wind phone. This Japanese film is available to watch in full for free on YouTube <a href="https://youtu.be/Uq8T3aJF5IA?si=YBbW0W8R0-CDTvic&amp;t=20" target="_blank" rel="noopener">here</a>. Don’t forget to turn on captions to get the subtitles in English and have a box of tissues nearby.</p>
<p><em>Main photo: Ray Baldacchino next to his backyard wind phone.</em></p>
<p>The post <a href="https://volunteerhub.com.au/heres-a-wind-phone-i-prepared-earlier/">Here&#8217;s a wind phone I prepared earlier</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>Bringing Volunteer Managers together</title>
		<link>https://volunteerhub.com.au/bringing-volunteer-managers-together/</link>
		
		<dc:creator><![CDATA[Maria Lopez]]></dc:creator>
		<pubDate>Sun, 23 Aug 2026 23:56:09 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[2026 NSW Palliative Care Volunteer Managers Conference]]></category>
		<category><![CDATA[Program announced]]></category>
		<category><![CDATA[volunteer managers]]></category>
		<category><![CDATA[Volunteers]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15635</guid>

					<description><![CDATA[<p>This year marks an exciting milestone for the NSW palliative care community, with the NSW Palliative Care Volunteer Managers Conference being held concurrently with the NSW Palliative Care State Conference for the very first time.</p>
<p>The post <a href="https://volunteerhub.com.au/bringing-volunteer-managers-together/">Bringing Volunteer Managers together</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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<p>This year marks an exciting milestone for the NSW palliative care community, with the NSW Palliative Care Volunteer Managers Conference being held concurrently with the NSW Palliative Care State Conference for the very first time.</p>
<p>Bringing palliative care volunteer managers together alongside palliative care professionals creates a unique opportunity to share knowledge, strengthen networks, and celebrate the vital contribution volunteers make to palliative and end-of-life care services across NSW.</p>
<p><strong>Program announced</strong></p>
<p>Whether you have spent years leading palliative care volunteer programs or are relatively new to managing and coordinating palliative care volunteers, the 2026 NSW Palliative Care Volunteer Managers Conference offers a program tailored to support and inspire you.</p>
<p>The organising committee has carefully crafted a diverse and engaging agenda that addresses the challenges, opportunities, and evolving landscape of volunteer management in palliative care. Attendees will have opportunities to learn from peers, exchange ideas, and gain practical insights that can be applied within their own organisations.</p>
<p>Conference delegates are invited to kick off the event at the Welcome Reception on Monday evening, providing a valuable opportunity to connect with colleagues and build relationships before the program begins.</p>
<p><strong>Event Location: </strong>Sydney Masonic Centre. 66 Goulburn St, Sydney NSW 2000</p>
<p><strong>Dates: </strong>Mon, 19 Oct 2026 &#8211; Wed, 21 Oct 2026</p>
<p><strong>View the full program here:</strong> <a href="https://pcnswconference.org.au/volunteer-managers/" target="_blank" rel="noopener">https://pcnswconference.org.au/volunteer-managers/</a></p>
<p>We encourage anyone who manages, coordinates, or oversees volunteers involved in palliative or end-of-life care to attend.</p>
<p>While the Volunteer Managers Network is centred in New South Wales, we warmly welcome volunteer managers from interstate and overseas. The conference provides an excellent forum for networking, sharing experiences, and learning from colleagues working in a variety of settings and jurisdictions.</p>
<p><strong>Registration Information</strong></p>
<p>To register for the Volunteer Managers Conference, please contact <strong>Kate Bowman, Manager, Volunteer Services Support Program</strong>, for registration details. A special access code is required to complete your registration.</p>
<p>If you already have the access code, you can proceed directly by clicking the <a href="https://pcnswconference.org.au/registration/" target="_blank" rel="noopener"><strong>Registration</strong> </a>button located at the top right-hand corner of the conference webpage.</p>
<p>Please note that registration for the Volunteer Managers Conference <strong>does not include a ticket to the Gala Dinner</strong>. An alternative dinner option for Volunteer Managers Conference attendees will be available, with details to be announced.</p>
<p><strong>Thank You to Our Organising Committee</strong></p>
<p>A special thank you goes to the 2026 NSW Palliative Care Volunteer Managers Conference Organising Committee for the many hours of dedication, planning, and collaboration that have made this event possible.</p>
<p><strong>We gratefully acknowledge:</strong></p>
<ul>
<li>Kylie Clark</li>
<li>Sarah Potter</li>
<li>Jacqueline Martinez</li>
<li>Maree Montgomery</li>
</ul>
<p>Their commitment to supporting palliative care volunteer managers and strengthening volunteer-led palliative care services has been instrumental in bringing this conference to life.</p>
<p>We look forward to welcoming palliative care volunteer managers from across Australia and beyond for what promises to be an inspiring and valuable event.</p>
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</div>
<p>The post <a href="https://volunteerhub.com.au/bringing-volunteer-managers-together/">Bringing Volunteer Managers together</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>When telling your story becomes a gift</title>
		<link>https://volunteerhub.com.au/when-telling-your-story-becomes-a-gift/</link>
		
		<dc:creator><![CDATA[Maria Lopez]]></dc:creator>
		<pubDate>Wed, 19 Aug 2026 23:23:00 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Biography]]></category>
		<category><![CDATA[Matthew Cumming]]></category>
		<category><![CDATA[St Vincent's Hospital]]></category>
		<category><![CDATA[Stories at the End of Life]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15628</guid>

					<description><![CDATA[<p>Providing much more than just a legacy document, biography or life story programs are being offered by a growing number of palliative care volunteer services across NSW.</p>
<p>The post <a href="https://volunteerhub.com.au/when-telling-your-story-becomes-a-gift/">When telling your story becomes a gift</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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										<content:encoded><![CDATA[<p>Providing much more than just a legacy document, biography or life story programs are being offered by a growing number of palliative care volunteer services across NSW.</p>
<p>Facing a terminal diagnosis changes the way people think about time. Priorities shift. Small moments become precious. Experiences that once seemed ordinary can take on profound meaning.</p>
<p>For Matthew Cumming, who was diagnosed with stage-four prostate cancer in 2020, that shift led him to reconnect with what mattered most. He returned to sailing, travelled with loved ones, and embraced opportunities that had long been postponed. But one of the most meaningful experiences came not from a destination or adventure, but from something surprisingly simple: telling his life story.</p>
<p><strong>The Power of Looking Back</strong></p>
<p>Many people assume they haven&#8217;t done anything extraordinary enough to warrant a biography. Matthew initially felt the same way, questioning what he could possibly have to offer. Yet through a biography program at St Vincent&#8217;s Hospital Sydney, he spent time reflecting on his experiences, achievements, relationships, and lessons learned.</p>
<p>What emerged was not just a record of events. It was recognition.</p>
<p>The process helped him see his life from a different perspective. The conversations provided purpose, connection, and an opportunity to appreciate the impact he had made on others.</p>
<p>It&#8217;s a reminder that most lives are far richer than we give ourselves credit for.</p>
<p>Cumming’s biographer Tilgals, who retired from a career in media last year, says volunteering has had an enormous impact on her life<strong>.</strong></p>
<p>The hospital, whose program has been running for 12 years, has just partnered with the University of Notre Dame on a study hoping to back up the anecdotal benefits staff, patients, families and volunteers have experienced. It’s slated for publication later this year.</p>
<p>Davinia Seah, head of palliative medicine at St Vincent’s, hopes the findings from the Notre Dame study will help bolster credibility and secure greater funding for the service.</p>
<p>“It’s the human aspects of people’s stories that come out, bringing back connection, making one <em>human</em>, not just a patient,” she says.</p>
<p>Professor Megan Best, a research associate at Notre Dame’s Institute for Ethics and Society, is leading the study. We&#8217;re delighted that Professor Best will be presenting her findings on her Storytelling at End of Life: Evaluating the Establishment of Volunteer-Led Biography Programs in Palliative Care research at this year&#8217;s Volunteer Managers Conference. {add link &#8220;Volunteer Managers Conference&#8217; to volconf program page <a href="https://pcnswconference.org.au/volunteer-managers/" target="_blank" rel="noopener">https://pcnswconference.org.au/volunteer-managers/</a></p>
<p><strong>Why Stories Matter at the End of Life</strong></p>
<p>Palliative care is often associated with managing physical symptoms and improving comfort. Increasingly, however, healthcare providers are recognising the importance of emotional and spiritual wellbeing.</p>
<p>Biography programs allow patients to reflect on their lives, preserve memories, and create a lasting legacy for families. These conversations can help people find meaning, reinforce their identity, and feel seen as more than a diagnosis.</p>
<p>For family members, the resulting stories become treasured records. Future generations gain insight into who their parents, grandparents, and loved ones truly were beyond the roles they played in everyday life.</p>
<p>This <a href="https://www.smh.com.au/lifestyle/life-and-relationships/after-a-terminal-diagnosis-this-simple-act-brought-matthew-joy-20260728-p60j9w.html" target="_blank" rel="noopener">news story</a> written by Sydney Morning Herald lifestyle writer <a href="https://www.smh.com.au/by/lauren-ironmonger-p5365j" target="_blank" rel="noopener">Lauren Ironmonger</a>, writes that Matthew&#8217;s experience highlights something universal: every person has a story worth telling. We often wait for a milestone, retirement, or crisis before reflecting on our lives. Yet taking time to record memories, share experiences, and express gratitude can be valuable at any stage of life.</p>
<p>In a world that often celebrates achievement, biography programs remind us of a deeper truth: every life contains meaning, and every story is worth remembering.</p>
<p><strong>Source:</strong> Sydney Morning Herald article &#8220;<a href="https://www.smh.com.au/lifestyle/life-and-relationships/after-a-terminal-diagnosis-this-simple-act-brought-matthew-joy-20260728-p60j9w.html" target="_blank" rel="noopener">After a terminal diagnosis, this simple act brought Matthew joy</a>&#8220;</p>
<p>The post <a href="https://volunteerhub.com.au/when-telling-your-story-becomes-a-gift/">When telling your story becomes a gift</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>The healing power of pet therapy</title>
		<link>https://volunteerhub.com.au/the-healing-power-of-pet-therapy/</link>
		
		<dc:creator><![CDATA[Maria Lopez]]></dc:creator>
		<pubDate>Mon, 17 Aug 2026 23:23:42 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Austin Health]]></category>
		<category><![CDATA[healthcare]]></category>
		<category><![CDATA[ICU]]></category>
		<category><![CDATA[Pet Therapy]]></category>
		<category><![CDATA[therapy dogs]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15632</guid>

					<description><![CDATA[<p>A wagging tail, a gentle nudge, and a few moments of connection can make all the difference for someone facing illness, stress, or isolation.</p>
<p>The post <a href="https://volunteerhub.com.au/the-healing-power-of-pet-therapy/">The healing power of pet therapy</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p>A wagging tail, a gentle nudge, and a few moments of connection can make all the difference for someone facing illness, stress, or isolation.</p>
<p>Recent hospital experiences have highlighted the remarkable impact therapy dogs can have on patient wellbeing. At Austin Health, in Victoria, a therapy dog visit to the Intensive Care Unit (ICU) helped create a moment of calm and comfort for a patient and family member during an incredibly challenging time. Staff reported seeing stress levels ease, smiles return, and meaningful connections form across patients, families, and healthcare teams.</p>
<p>Evidence continues to demonstrate the value of therapy dog programs in healthcare settings. Research has shown that interactions with therapy dogs can help reduce anxiety, stress, perceived pain and loneliness, while creating meaningful moments of comfort and connection for patients and families. Studies in intensive care units have found that therapy dog visits can provide immediate emotional benefits and help humanise what can otherwise be a highly clinical environment. (Sources: <a href="https://www.abc.net.au/news/2025-05-09/therapy-dogs-reducing-pain-anxiety-canberra-intensive-care-unit/105274984" target="_blank" rel="noopener">Therapy dogs help reduce pain and anxiety in intensive care, Canberra Hospital study finds</a> and <a href="https://assets.cureus.com/uploads/review_article/pdf/428244/20251117-181785-ju7d4.pdf" target="_blank" rel="noopener">Therapy Dogs at the Bedside: A Scoping Review<br />of Pet Therapy in Adult Intensive Care Units</a></p>
<p>While therapy dogs often capture the spotlight, it is the dedicated volunteers behind these programs who make every visit possible. From training and assessment to ongoing support and coordination, volunteers contribute countless hours to ensuring therapy dog teams can safely and effectively support people in hospitals, aged care homes, schools, community services, and other settings.</p>
<p>Pet therapy programs demonstrate the unique value that volunteers bring to communities. As seen in healthcare settings, volunteers often provide something that complements professional care: companionship, reassurance, and human connection. Their contribution helps create positive experiences that can improve quality of life and support emotional wellbeing for those facing difficult circumstances.</p>
<p><span data-redactor-style-cache="color: var(--color-stuck-red);">This important role of volunteer-led pet therapy will be in focus at the <strong>Palliative Care</strong> <strong>Volunteer Managers Conference this October</strong>, where <strong>Nepean Therapy Dogs</strong> will be presenting on the impact of therapy dog programs and the volunteer teams who deliver them. Attendees will have the opportunity to learn more about the benefits of animal-assisted support, the recruitment and management of therapy dog volunteers, and the growing recognition of pet therapy as a valuable complement to health and community services.</span></p>
<p>Read the inspiring story at Austin Health by clicking here: <a href="https://www.austin.org.au/news/a-paw-sitive-first-for-icu--pet-therapy-brings-comfort-to-critically-ill-patients/" target="_blank" rel="noopener">A paw-sitive first for ICU: Pet Therapy brings comfort to critically ill patients</a></p>
<p>The post <a href="https://volunteerhub.com.au/the-healing-power-of-pet-therapy/">The healing power of pet therapy</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>What neuroscience says about grief</title>
		<link>https://volunteerhub.com.au/what-neuroscience-says-about-grief/</link>
		
		<dc:creator><![CDATA[Kate Bowman]]></dc:creator>
		<pubDate>Fri, 14 Aug 2026 07:16:50 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[grief]]></category>
		<category><![CDATA[neuroscience]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15623</guid>

					<description><![CDATA[<p>If your grief comes in waves with no warning, that’s not instability. That’s your amygdala firing unpredictably because it keeps detecting the absence of someone it was wired to expect. If you feel fine for weeks then completely fall apart, that’s not regression. That’s your prefrontal cortex finally lowering its defences once the immediate survival [&#8230;]</p>
<p>The post <a href="https://volunteerhub.com.au/what-neuroscience-says-about-grief/">What neuroscience says about grief</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p>If your grief comes in waves with no warning, that’s not instability. That’s your amygdala firing unpredictably because it keeps detecting the absence of someone it was wired to expect.</p>
<p>If you feel fine for weeks then completely fall apart, that’s not regression. That’s your prefrontal cortex finally lowering its defences once the immediate survival response is over.<br /><br />If you can’t concentrate, remember words, or finish sentences while grieving, that’s not losing your mind. That’s cortisol and norepinephrine actively impairing hippocampal function — grief physically disrupts memory formation.<br /><br />If your body aches, your chest feels tight, or you feel physically ill, that’s not psychosomatic. That’s your anterior cingulate cortex — the same region that processes physical pain — lighting up in response to loss.<br /><br />If you feel angry instead of sad, that’s not the wrong reaction. That’s your nervous system choosing fight over freeze because your brain is desperately searching for something it can control.<br /><br />If you keep reaching for your phone to tell them something before remembering, that’s not morbid. That’s a prediction circuit your brain built over years that hasn’t been updated yet. It takes time to rewrite.<br /><br />If your sleep is completely destroyed even when you’re exhausted, that’s not insomnia. That’s your threat-detection system refusing to go offline because it’s still scanning for the person it lost.<br /><br />If you feel relief after losing someone, even someone you loved deeply, that’s not a character flaw. That’s your nervous system exhaling after a prolonged period of anticipatory stress. Relief and love are not opposites.<br /><br />If grief hits hardest at night, that’s not weakness. That’s your prefrontal cortex — your rational override — running out of fuel, leaving your limbic system unguarded and your loss unfiltered.<br /><br />If you feel guilty for laughing, enjoying something, or having a good day, that’s not betrayal. That’s a nervous system that confused grief with loyalty. Healing was never the opposite of love.<br /><br /></p>
<p>There is no right or wrong way to grieve. Be kind to yourself. Give space. Allow time. Just breathe.</p>
<p>&nbsp;</p>
<p><em>Story credit: </em><a href="https://griefcare.com.au/" target="_blank" rel="noopener"><em>Grief Care</em></a></p>
<p>The post <a href="https://volunteerhub.com.au/what-neuroscience-says-about-grief/">What neuroscience says about grief</a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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		<title>MQU students on board for 2026 Snapshot </title>
		<link>https://volunteerhub.com.au/mqu-students-on-board-for-2026-snapshot/</link>
		
		<dc:creator><![CDATA[Kate Bowman]]></dc:creator>
		<pubDate>Mon, 10 Aug 2026 07:24:40 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[2026]]></category>
		<category><![CDATA[intern]]></category>
		<category><![CDATA[MQU]]></category>
		<category><![CDATA[PACE]]></category>
		<category><![CDATA[research]]></category>
		<category><![CDATA[snapshot]]></category>
		<guid isPermaLink="false">https://volunteerhub.com.au/?p=15608</guid>

					<description><![CDATA[<p>The post <a href="https://volunteerhub.com.au/mqu-students-on-board-for-2026-snapshot/">MQU students on board for 2026 Snapshot </a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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			<p><span data-contrast="auto">Two students from Macquarie University are joining us this semester to work on our longitudinal research project – Snapshot 2026: A review of Palliative care Volunteering in NSW.</span><span data-ccp-props="{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559685&quot;:0,&quot;335559737&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:279}"> </span></p>
<p><span data-contrast="auto">Every four years, we engage every NSW palliative care volunteer services in research. Our aim is to provide an update on service provision and get a snapshot of the health of the sector. Our 2022 Snapshot was undertaken under the cloud of COVID restrictions with volunteer numbers at an all-time low. Knowing many services have been recruiting we look forward to mapping how much the sector has grown. </span><span data-ccp-props="{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559685&quot;:0,&quot;335559737&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:279}"> </span></p>
<p><span data-contrast="auto">Working with us on the research this time we have two student interns from Macquarie University, Shin Bhone (Mabel) Thant and Stella Blackett. They will be a part of the project the whole way through and this year we will be working on streamlining the survey questions. Mabel and Stella will be reaching out to Volunteer Managers over the next few weeks to book timeslots for the Snapshot survey interviews. We will need to speak to a representative from every palliative care volunteer service in NSW, so we thank you in advance for your cooperation.</span><span data-ccp-props="{}"> </span></p>
<p><span data-contrast="auto">Please join me in welcoming our research team. I have every confidence in them and I’m sure that over this semester they will both learn a lot about planning and conducting social research, stakeholder engagement, data analysis, and report writing.</span><span data-ccp-props="{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559685&quot;:0,&quot;335559737&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:279}"> </span></p>
<p style="padding-left: 40px;"><span data-contrast="auto">Hi, my name is Stella and I&#8217;m currently studying a Bachelor of Social Sciences at Macquarie University. With this experience, I am really excited to learn more about the volunteer work provided for palliative care as well as expanding my knowledge on how important the quantitative and qualitative research is for bettering everyone involved. I am very excited for this new experience (photo right).</span><span data-ccp-props="{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335559685&quot;:0,&quot;335559737&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:279}"> </span></p>
<p style="padding-left: 40px;"><span data-contrast="auto">Hi, my name is Shin Bhone (Mabel) and I’m studying Bachelor of Social Science at Macquarie University. I hope I will get experience with professional work settings, applied research, survey and work-related report writing as well as time management from my internship with Palliative care NSW. Although I’m a bit anxious about not being able to meet satisfactory outcomes, I’m very excited to expand my knowledge around quantitative and qualitative research and professional office related work environment (photo left).</span></p>
<p>Welcome to the team Mabel and Stella. We are happy to have you working with us.</p>
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<p>The post <a href="https://volunteerhub.com.au/mqu-students-on-board-for-2026-snapshot/">MQU students on board for 2026 Snapshot </a> appeared first on <a href="https://volunteerhub.com.au">VolunteerHub - Palliative Care NSW</a>.</p>
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